Tag: #journey

Always watching…

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This is Roz from the movie “Monsters, Inc.” It’s a cute movie with the story line: kids’ laughter is more powerful than their fear. Whenever I think of someone watching, Roz’ voice pops into my head.

Recently, our Destination Imagination (DI) team went to the MN state tournament to compete. They won their regional event and this was the first time Myles’ team had gone to state. They were very excited. 10 middle school teams competed in their “Game On” challenge, but there were a bunch of kids in many categories. It was an all day event. And, any event which hosts thousands of kids and parents needs lots of volunteers. I was the volunteer for our team.

To back up a little, Destination Imagination is kind of hard to explain. The description online says, “Destination Imagination is a volunteer-led, educational non-profit organization that teaches “21st-century” skills and STEM principles to kindergarten through university level students through collaborative problem solving challenges.” Myles’ team is a group of 4 boys in 6th grade and one in 5th. They had to come up with an 8 minute “central challenge” skit. Their category was fine arts and this year it had a game theme. They chose to combine “Sorry” and “Pac-Man” to be called “Sorryman.” The kids come up with everything. From their team name, to their set design, script and costumes… it’s all their ideas. Seeing them progress over the course of 4-5 months is amazing. It teaches them problem solving skills, working together to complete a challenge, and overcoming obstacles.

So, back to the event…. the team performed and did an amazing job. My volunteer shift was in the afternoon. I needed to be the door monitor. Close the door when the team is ready to start. Open the door when they are done. Do not let anyone in during the performance. Simple, right? I had a dad ask me if his daughter was in the room. (I didn’t know the man or his daughter) At first, I thought he was joking. Then he described her – seriously? I don’t know your daughter. The thing that bothered me though was the lady who got mad at me. An adult female wanted to argue about the door being shut.

Me: “I’m sorry, you’ll have to wait until they are done.” Lady: “But my team is inside.” Me: “The door needs to stay shut during performance, you’ll have to wait.” Lady: “But my team is inside.” Someone else comes up to the tiny window. Lady (to the stranger): “She won’t let you in.”

Wow. Ok. Your kid might not have been there, but 10 other kids watched this interaction. They watched someone who didn’t think the rules applied to them get mad about rules. The same person would have been livid if someone just walked in while her kid was performing. It’s rude. Our kids are watching. Always watching. They take cues off others about how to behave. Let’s give them better examples. I’m not perfect. I have my flaws. But, I hope I’m showing my boys how to be kind. The door monitor doesn’t have a problem with you, she’s just trying to help out her team.

As much as DI teaches life skills, we also teach those skills each day without knowing. On your journey of enough, someone is always watching.

Peace be with you on your journey of enough.

What to do or say…

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When I was diagnosed with breast cancer in 2014, I had no idea how it would change my life. Writing a Caring Bridge update and then a regular blog has opened me up for questions. I get asked from friends, relatives and acquaintances about how they can help their newly diagnosed cancer friend. I am honored to answer such questions. I know everyone’s journey is different and not everyone appreciates the same things I do. I hope I am able to give some good advice and perhaps spark some joy for those who are traveling a scary path.

Here are some things I frequently tell people when I’m asked, “what can I do?!”

Do:

  • Reach out to them in some way.
  • Send a card or note – it doesn’t have to be big. (I kept all of the cards and notes)
    Journals or notebooks are helpful. There are lots of Dr appointments, things to remember or record. They may also want a journal to chronicle their journey.
    Start a meal train to make sure they don’t have to worry about supper.
    Support their family – their spouse/partner or kids. (Take the kids somewhere fun or just drive them to events, if needed.)
    Offer to do their grocery shopping, laundry or cleaning.
    Give some gift cards to the family.
    Offer a massage certificate.
    Tell positive stories about survivors.
    Give a good book, one you’ve enjoyed – it doesn’t need to be new.
    Hug or touch them, if appropriate. Cancer isn’t contagious.
    Pray intentionally for and/or with them.

Don’t:

  • Don’t tell them stories about people who died. They do not need to know about your neighbor’s aunt who had the same thing and died in 3 weeks.
  • Please don’t ignore them. This is hurtful. The people who left me during cancer were not really my friends.
  • Don’t ask them to “let me know what I can do to help.” They do not need to find a to-do list for you. They are seriously just trying to get by. I know people mean well by this, but it’s one of the least helpful things (in my opinion).
  • Don’t tell them, “I was going to stop by/call/do something etc.” This tells them you thought about it for a minute but you really weren’t worth their time. Sometimes it’s because they wanted to do the perfect or huge thing and didn’t get around to it.
    Please don’t judge how the spend their time or money. You probably don’t know their whole story.
    Don’t look at them like they are about to die. They can see the “oh this must be so difficult” look on your face.
    Don’t tell them it’s karma. (Seriously, someone said this to me.)

Some people love the word survivor, while others find it annoying. Some choose to go through their journey quietly, not wanting people to know. Everyone is different… but hopefully this gives you some ideas of what helped me. This applies to many situations, not just cancer – anyone who is struggling may benefit from the list above.

Go write the note, make the call or bring the hot dish. I believe God puts people in our path for a reason, so who am I to argue with that? On your journey of enough, there will be bumps along the way. Hopefully those bumps are also learning experiences and you have someone to love and support you. Peace be with you, and your friend.

Neo what?

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Before 2014, I hadn’t heard the word “neoplasm” before. If you would have asked me what it was, I would have assumed it was some kind of science fiction term. I might have thought it had something to do with The Matrix (since Neo was the main character). I never thought it would be part of my permanent record. (My medical record, not my criminal record.)

Yesterday was my oncology follow up. Every 6 months, I drive back to Fargo to meet with the oncology Dr to see if anything has changed. Before this appointment, I had an MRI, ultrasound and mammogram in Alexandria. A few days after the tests and before the oncology appointment, I skimmed through the test results online looking for key words… “no sign of malignancy,” “benign,” “no abnormalities.” I’m not a doctor, but I know that if you have those 3 tests and there is anything suspicious, they will call you. Since I was reading these results myself, this was also a good sign. I saw nothing that looked concerning.

A neoplasm is a fancy word for tumor. My medical records will always include “malignant neoplasm of central portion of left female breast.” I will always remember December 2014. The timing of cancer free or survivor vary depending on what you’re talking about. They consider you a survivor when you’re diagnosed… I guess because you’re not dead? That part seemed strange to me. You’re considered cancer free after they remove your tumor. The “5 year mark” for me is based on when I started my hormone suppressing (aka “anti-cancer pills.”) I started those the summer after my hysterectomy, so according to that, I’m at 3 1/2 years. These were all things we discussed at the appointment. Since my side effects are minimal, I will likely stay on this medication for 10 years. The doctor agreed. It was a pretty uneventful appointment, and I am SUPER thankful!

After I got the “all clear,” I stopped up to see a friend (similar in age) on the oncology floor. He was in for low white counts and infection risk. We talked about somedays. I shared with him my clean bill of health, we talked about how kids process a parent with cancer, and we talked about how this changes you. It’s difficult to describe unless it’s happened to you. Someday we will take the trip. Someday I’ll change jobs. Someday we will start a family (not either of us by the way.. I was just making a point.) Cancer gives you a reminder that we are human. We aren’t meant to walk the earth in the same body forever. We don’t have an unlimited time line. Love, live life and experience it!

When I read the word neoplasm, my heart stops a little. Perhaps years from now it won’t do that, but for now it still does. It releases a flood of emotions some days, and other days I don’t think about it as much. For today, I will thank the neoplasm for all it has taught me, and be thankful it is gone.

On your journey of enough, may you be surrounded by people who care about you. Go do one of your somedays & reach out to that person you’ve been “meaning to call.”

Do it anyway…

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Another storm was set to dump a foot of snow on MN this past Saturday, and our youngest son, Myles is still in a full leg cast. I had made reservations for one night at the Stoney Ridge Treehouse in Burtrum, MN. Would we be able to get there? Would we be able to get out? Would Myles enjoy it at all? Should we cancel? The snow was supposed to start early, but it looked ok at home. The owner texted me saying we could arrive sooner because the people ahead of us were gone and they knew we’d want to arrive before travel became difficult.

We had an uneventful drive to the treehouse. The roads were actually pretty clear. Aside from some backseat driving, um, I mean navigating, we made it to the treehouse by noon. The snow was falling gently. The treehouse has a covered bridge up to it, so it was accessible for Myles. Once we got settled, Cameron & Dallas put on their boots to trek down to the lake. No fishing gear came along this time, but they wanted to check it out for future trip possibilities. The 850 square foot treehouse is beautiful. Hand crafted cabinets and furniture, big beams and lots of windows made this an impressive cabin.

There is a small kitchen, a main bedroom and a small bathroom. As much as Myles wanted to go up to the loft, that wasn’t an option. Up there was a table & chairs, futon, tv, bed and another bedroom. We’d make some modifications and have the TV on the main floor so he could enjoy them also. We had brought movies with us & popcorn too!

I’d be lying if I said it was a “technology free” stay, but it was relaxing. As the snow continued to fall, we turned the outside lights on to watch. One big circle window at the top was designed with a light above it, so it looks like a snow globe when it’s snowing. We didn’t try the hot tub because that would have been difficult for Myles, but they had one there & the people before us had clearly enjoyed it. I’m sure it would be fun in the snow too!

We watched movies, took a nap, read a book and looked through the pictures chronicling the story of the treehouse being built. We read the journal entries of the guests before us (sometimes with added info for dramatic effect). We played Sequence and taught the boys International Rummy. We made our own food and even had heart shaped pastries for breakfast. At one point, my husband said, “This makes your heart happy, doesn’t it?” Yes, yes it does. Because to these three guys, I am enough. I’m the one who plans our family trips, makes sure everyone packed their clothes (but sometimes forgets the toothbrush), plans the meals and packs the snacks. As we packed up, 24 hours after our arrival, Myles said, “thanks for a fun time.” And it was all worth it. The drive home was more challenging due to the foot of snow, but the roads were plowed and the sun was shining. We made it home safely.

My advice is… on your journey of enough, if there are challenges or obstacles, do it anyway. Take the trip, spend the time together & soak it up like a sponge. Don’t forget to take the picture, even if they have to get back out of the car (& you risk the embarrassment of someone seeing it.) Do it anyway.

Well done…

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I’m not talking about steak or my score on this game… it’s a song. I know I write a lot about songs, but it’s one of the ways I pay attention to messages. A Contemporary Christian group, “The Afters,” has a song on Sirius radio called “Well Done.” I hear it a lot. I feel like many of us long to be told “good job” or “well done.” Such simple words, but when they aren’t said, can leave us searching to be enough.

Here are some of the lyrics:

What will it be like when my pain is gone
And all the worries of this world just fade away?
What will it be like when You call my name
And that moment when I see You face to face?
I’m waiting my whole life to hear You say
Well done, well done
My good and faithful one
Welcome to the place where you belong
Well done, well done
My beloved child
You have run the race and now you’re home
Welcome to the place where you belong
What will it be like when tears are washed away
And every broken thing will finally be made whole?
What will it be like when I come into Your glory
Standing in the presence of a love so beautiful?
I’m waiting my whole life for that day
I will live my life to hear You say
Well done, well done
My good and faithful one
Welcome to the place where you belong
Well done, well done
My beloved child
You have run the race and now you’re home
Welcome to the place where you belong

Powerful words. The lyrics seem to imply that we have to wait until we are gone to hear God say, “well done.” I happen to disagree. I think he says it in ways we might not recognize… When we pay it forward to someone in the drive though and they smile, God smiles too. When we reach out to someone who is sad, hurting or going through a difficult time, God sighs with us. When we pay attention to a child who needs help or just needs someone to listen, God is listening too. When we take time out of our day to be thankful for what we have, God is thankful for our acknowledgment. When we celebrate with those we love, God celebrates also. In these ways, he says, “Well done.” We may not hear the words. We may not recognize the significance, but it matters. It matters to Him, to us and to those around us. By being the hands and feet of God, we are doing his work. Sometimes we think it needs to be monumental or difficult in order to be meaningful. But by doing the small things, God is saying “Well done,” even if we don’t feel it.

Peace be with you on your journey of enough. Be sure to say the words, “Well done” to someone… it might be just what they need to hear.

Thoughts are powerful…

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Are you familiar with the saying, “Be careful what you wish for?” Thoughts are powerful. What we focus on, we attract. Think the world is crappy? You will look for validation of that and either see, find or experience crappy things. Think things are great? You will also find validation of those thoughts… you will look for the good in people, find the bright spot in the day or make someone else smile.

Recently, I’ve been lamenting about how quickly my sons are growing. They are more independent, one is driving and they just don’t need me as much. Then Myles broke his leg. I’m not sure how much the leg splint or the cast weigh, but for a 12 year old, who isn’t much more than 100 lbs, it’s a significant amount. He cannot bend over. He needs help with many daily tasks that seemed like no big deal prior to February 2nd, when his tib/fib fractures changed his life. He suddenly needed me. My husband made the comment that I must love being needed again. I got defensive. “Woah, I never wished for him to break his leg.” Well, no, not directly, but he does now need help.

Wheew. That was a tough one. It really brought home the power of thoughts. I’ve said to myself several times, “I’m too heavy” or “my stomach is too fat.” I recently lost almost 30 pounds. And then something happened. I stepped on the scale and couldn’t believe the number. I hadn’t been that weight in a while. And although I should have been happy, it scared me. My identity as overweight was changing. So I ended up eating things I had avoided for several months. I gained 10lbs back and was subconsciously trying to get back to that overweight me I had identified with for so long. Now I need to shift my thoughts back to the positive. I need to remember my “why” … why I wanted to get healthier in the first place. It’s not a vanity thing or a competition. I want to live longer. I want to honor this body I’ve been given and keep it around for a while.

Is your glass half empty or half full? When life hands you lemons, will you make lemonade? (These lemons in the picture were from my sister’s tree in CA last week. Dallas are one like an orange!) If you knew how powerful your thoughts were, would you try to change them? Every time you think of something negative, try to think of 2 or 3 things positive. It’s more difficult than it sounds. I’m not sure if this is one of the coldest or snowiest winters in MN, but it’s probably on the top 10 list for sure. Complaining about the weather won’t make it sunny & warm. Thinking positively won’t make it warm either but it certainly won’t make you miserable. Might as well put on some extra layers or a heated blanket & grab a glass of lemonade!

I wish you peace on your journey of enough. May your glass be half full, but more importantly, be refillable.

Thoughts are powerful…

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Are you familiar with the saying, “Be careful what you wish for?” Thoughts are powerful. What we focus on, we attract. Think the world is crappy? You will look for validation of that and either see, find or experience crappy things. Think things are great? You will also find validation of those thoughts… you will look for the good in people, find the bright spot in the day or make someone else smile.

Recently, I’ve been lamenting about how quickly my sons are growing. They are more independent, one is driving and they just don’t need me as much. Then Myles broke his leg. I’m not sure how much the leg splint or the cast weigh, but for a 12 year old, who isn’t much more than 100 lbs, it’s a significant amount. He cannot bend over. He needs help with many daily tasks that seemed like no big deal prior to February 2nd, when his tib/fib fractures changed his life. He suddenly needed me. My husband made the comment that I must love being needed again. I got defensive. “Woah, I never wished for him to break his leg.” Well, no, not directly, but he does now need help.

Wheew. That was a tough one. It really brought home the power of thoughts. I’ve said to myself several times, “I’m too heavy” or “my stomach is too fat.” I recently lost almost 30 pounds. And then something happened. I stepped on the scale and couldn’t believe the number. I hadn’t been that weight in a while. And although I should have been happy, it scared me. My identity as overweight was changing. So I ended up eating things I had avoided for several months. I gained 10lbs back and was subconsciously trying to get back to that overweight me I had identified with for so long. Now I need to shift my thoughts back to the positive. I need to remember my “why” … why I wanted to get healthier in the first place. It’s not a vanity thing or a competition. I want to live longer. I want to honor this body I’ve been given and keep it around for a while.

Is your glass half empty or half full? When life hands you lemons, will you make lemonade? (These lemons in the picture were from my sister’s tree in CA last week. Dallas ate one like an orange!) If you knew how powerful your thoughts were, would you try to change them? Every time you think of something negative, try to think of 2 or 3 things positive. It’s more difficult than it sounds. I’m not sure if this is one of the coldest or snowiest winters in MN, but it’s probably on the top 10 list for sure. Complaining about the weather won’t make it sunny & warm. Thinking positively won’t make it warm either but it certainly won’t make you miserable. Might as well put on some extra layers or a heated blanket & grab a glass of lemonade!

I wish you peace on your journey of enough. May your glass be half full, but more importantly, be refillable.

More Joy…

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We recently spent 3 days at Disneyland. We went mainly to see my niece perform with her high school choir. It was also a great reason to see my sister & both nieces and a nice escape from a chilly MN winter. On February 2nd, our Disneyland plans were in question. Would we still go, even with Myles’ broken leg? Would the 3 of us go and leave him at home? We decided to go, and with some modifications, we were determined to make it work. You can board the plane first, but storing crutches is a challenge. You can rent a wheelchair at Disneyland, but getting up to the gate takes a while. You can get in a separate line at most rides, but if you have a full leg cast, you’ll need someone to help you in. It’s not an ideal situation but you can do it. Which part of the sentence do you focus on?

There is a Disney movie, Inside out, from 2015. The main character is a little girl from MN who has to move with her family to a new city. The emotions are like characters in her head: Joy, Sadness, Anger, Fear and Disgust. Joy is the one pictured above. She is the leader of the rest, but depending on the situation, any of them can take over. Joy has a spunky, upbeat attitude. I purchased 3 different Joys at Disneyland. One pin came with the Sadness character- we traded that for a different pin and traded another one for the Joy head on the left. I also got a pressed penny with Joy on it. (I currently cannot find that Joy) I wore one of the pins on the left side of my shirt – I wore my “Joy.” I wanted to get a stuffed Joy, but I wasn’t sure I could fit the Joy in my bags.

  • It rained off and on and was chilly for part of the time, but still 30-60 degrees warmer than back home. If you listened to other people in line or walking around, you could often hear who was steering their ship at the time.
      • Someone with a bag in the “no bag line”
      Kid running away from parents
      People with umbrellas or ponchos
      People without umbrellas getting wet
      Someone at the end of a 200 minute ride wait
      The girl in the Ariel outfit in line for the Little Mermaid ride
      The little boy in the Storm trooper outfit by the Star Wars ride
      Kids eating ice cream, even though it was raining

    Who is steering your ship? Does Joy drive or does Disgust take over? Is Joy hidden when Anger takes over? Does Fear lead the show? Sometimes we need someone to help us get back on track. My husband tried to bring more Joy by pushing Myles in a wheelchair and doing wheelies. He also made noises and had him take a picture by the “Cast members only” sign – get it? Cast? Ha ha.

    Joy drives his ship most of the time. Sometimes it annoys me, but mostly I’m thankful. On your Journey of Enough, I hope you have a variety of emotions. There is a time for each of them, but hopefully Joy can take the lead. Peace be with you on your journey of enough… may you find more Joy.

    Stop trying to take the pen…

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    If you’re friends with me, you’ve likely seen this picture. Our youngest son, Myles, broke his leg skiing last Saturday. It was a warm-ish day for Minnesota. The sun was shining, and even though the wind was blowing, we were just glad it was above 0. It had been -60 wind chill just a few days earlier, so were thankful it felt almost 80 degrees warmer! His friends from his old school came to ski for the day near Alexandria. While Cameron & Dallas were off ice fishing, Myles & I went skiing. We were there early, got our gear on and hit the slopes. One of the friends hadn’t gone skiing before, so they spent a little time on the bunny hill. Before long, they were on the green runs, then the blue. Myles and his two friends had gone skiing many times and felt comfortable on the slopes. We live in Minnesota, so these are hills and not mountains. The runs aren’t long and the resort isn’t large. We let them go on their own.

    We were able to get them to stop and have lunch, and then it was back to the slopes. As the day went on, they talked about switching from skiing to go tubing. You stand on a magic carpet (with your tube) and ride to the top of the hill. Then you pick a “lane” and sail off down the hill. That was the plan anyway. Just another run or two and then tubing. I was putting my skis in the locker when the friends’ mom came in. “Um, you might want to come out. I think Myles is in trouble.” My first thought went to trouble meaning he was goofing around and was about to get kicked out. As I walked out the door, I saw the snowmobile & ski patrol trailer. Oh, trouble. I could see he was conscious, so I ran back inside to change into my snow boots (because I knew I couldn’t run up the hill in my ski boots.) I ran back outside & up the hill as fast as I could. They were loading him onto the ski patrol trailer. His boot was off and his right leg was in a splint.

    We rode to the ski patrol lodge and they carried him into the building. They checked him over, and advised us to make a trip to the ER. As scary as this is, I was just glad he didn’t hit his head, he was wearing a helmet and he wasn’t impaled by a tree. You see, he fell going through a wooded area. There was a path there so they thought it must be fine. It’s not a “marked run”. His buddy went before him but Myles got going too fast & couldn’t slow down. He passed his buddy & hit a tree. Another kid saw it happen from the chair lift and went down to check on him & get help.

    Super long story, but the next 5 hours were spent in the ER, and then extreme pain caused us to go back to the ER at 3am. He had broken both bones in his leg, right where the top of the ski boot was. 8-10 weeks in a full leg cast up to the top of his thigh, then smaller cast to follow. Whatever I had planned for the next 4 months was going to change. Maple syrup demonstration at the State Park? Cancel. Trip to Disneyland? Adjust. Spring plans? Alter. When we think we have things all planned out, we might get thrown a curve ball. It’s a reminder that we can’t control everything. There is an ad on the station I listen to that says, “God’s not done with your story yet, stop trying to take the pen.” While this event won’t immediately change me to be a non-planner, it certainly is a reminder to me of what a control freak I can be.

    I’m thankful he is ok. He will get through this and will be fine. My journey of enough will switch to being a good enough caregiver for a little while. Whatever your altered path is, I wish you peace on that journey. Sometimes it doesn’t go as planned, but that doesn’t mean we should stop planning, dreaming or trying to change. It just means you might need a different color pen.

    Multiplicity

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    On a very cold North Dakota January day, I went to my very last OB appointment for our first baby. There was a storm predicted for the weekend and my doctor wanted to make sure I didn’t have to deliver at home. It was a Thursday. He said I was close enough and he could induce me to get the labor started. If I remember correctly, I was induced that afternoon – for some reason, 4:30 sticks in my mind, but my husband probably remembers better than I do.

    The first baby is a big deal. We had been waiting and hoping and praying for this for years. We also didn’t know what to expect. The info they tell you ahead of time is silly.

    • Have a birth plan
    • Bring some music
    • Bring some card games along to pass time
  • Maybe these work for some people, but I certainly didn’t listen to music or feel like playing cards. As the wind howled outside, we counted contractions and nurses came in and out of the room to check on the progress. We weren’t planning on staying up all night. We didn’t know what to expect. Some people are in labor for days, and others just for a few hours. We had the TV on, hoping it would keep Cameron awake enough for the labor. There weren’t as many options back then. The movie that was on was “Multiplicity” from 1996.

    • If you haven’t seen it… Doug, played by Michael Keaton, is overwhelmed by life and had the opportunity to clone himself. The clone can go to work and he can do stuff around the house and with his family. Then he makes another clone because he still doesn’t have enough time or enough of him to go around. While he is gone, the clones make a copy of a clone – so now there are 4. The “copy of the copy” isn’t as helpful but adds to the comedy part of it.

    The movie was on again at the time of our son’s 16th birthday. All 4 of us watched it together. As we sat there, my husband grinned, “remember where we were 16 years ago?” Yes, yes I do. The boys thought the movie was funny. My husband thought this was also pretty good material for my blog. We all feel stretched thin at times… wishing we could be more places, do more things, relax more, or volunteer more. It seems like it won’t ever be enough. I think we need to be better about picking our “yes” to other people. I get that there are some things at work that you need to do & saying “no” might not be an option. I saw Rachel Hollis speak in Alexandria and one of her points was, “If it isn’t a hell yes, then it’s a NO.”

    We get scared to say no. We like to be so busy. We stretch ourselves thin and end up doing something we don’t love. What if we said no? We might not need to multiply ourselves if we allowed some “no’s.” I know we need people to volunteer, but some people really do like it. It might be their hell yes. As Rachel said, if we say yes to something we don’t really want to do, we end up resentful when we have to do it. We bring a negative energy with us.

    Just for this week, what if you didn’t need to multiply yourself? What if you were enough just as you are? Give it a try. I will too. I wish you peace on your journey of enough. (& maybe you can check out “Multiplicity” on Netflix.